We went to the neurology appointment yesterday and he agrees with the hypotonia diagnosis. So, the next step is getting blood work done (which I have to take him to the hospital for that tomorrow) to rule out any genetic stuff. My hubby is actually adopted so we have no family history on him which would be really helpful right now (oh, how different adoption laws are now!). A MRI will be done in 7 weeks after he gets all of the bloodwork results in and he has time to analyze them because evidentally different genetic tests take longer than others to be completed.
The bright side was that the neuro was very impressed with Cooper's fine motor skills and his cognitive and social skills. His biggest concerns (as are the PT and ped's) is his no trunk balance and his inability to bear weight on his legs. I LOVED this neuro though and so did Coop! This neuro would play him with him like Coop was his grandchild! He's such an awesome doctor!
I'm trying to remain positive and thank you to those that left personal stories of babies that you've known with hypotonia! Each story brought a little more hope to my heart.
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jen,
ReplyDeleteim so happy you found a dr. you trust. thats a big deal. i know this is a scary time but you'll figure things out and get things rolling for coop. im really sorry you're going through this but i know you can get through it and come out of it great! fabian was adopted too and we also have no medical history on him whatsoever. he was actually going through a bunch of crap trying to get answers out of his family when we first met. they were not helpful at all. we did find out a little bit of info and he ended up contacting his biological grandmother. anyway... i just thought it was interesting that we had yet another thing in common. im here if you want to hang out :)
I hope you find out something sooner rather than later. I am glad you found a doctor you like, too. That's so important. Big hugs.
ReplyDeleteGood luck! I hope everything goes well!
ReplyDeletethinking of you guys. i'm glad you got some good news and hopefully more will follow!
ReplyDeleteHey Jen, glad to see an update.. been thinking of you guys. Lots of thoughts and positive vibes coming your way!
ReplyDeleteI have been thinking about you, I am hoping that soon you can write other people in the same situation about what a happy ending you had with your little guy!
ReplyDeleteI've been thinking of you too! I hope everything goes well! Lots of good vibes sent your way & also to little Cooper!
ReplyDeleteBeen thinking of you and that sweet little face and praying that the news from the doctors is encouraging. I'm so glad to see the update. I don't know much about hypotonia (anything, really) but I do know that sweetheart of yours is a miracle and is being held in God's hands every second!!!
ReplyDeleteI'm so glad to hear all of the positive things about the appointment, and I'm glad you like the doctor! You are an amazing person to try to always look on the bright side. :)
ReplyDeleteHi Jen, Thank goodness you have a doc that you like and trust - makes such a difference huh? Being adopted and not 'knowing' your family's medical history must be frustrating. I really, sincerely hope that all goes well from here - yay for Coop on his awesome fine motor skills and general social coolness huh??? :)
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